Wednesday, September 15, 2010

Clint's first post ever!!!

The past few months have been full of so many ups and downs, and ups and down, and crap and the unknown. How the heck are you suppose to know what to do and when to do it and if u can do it or should be doing it. So we got a bone marrow biopsy on Monday because they wanted to see if the Leukemia was still in the marrow. We got the results this morning, which they told us that there is about 4% of Leukemic cells or cells with those markers. So the plan is to start a treatment with a drug called Azacitidine or (Vidaza), which is a drug that becomes incorporated into DNA and changes the structure of the DNA to allow the genes that suppress growth of the leukemia cells to function. So now we have 7 days of this treatment which fortunately for us we should be able to do at American Fork Hospital. So the success rate is about 50% of this stuff having an effect on the leukemia, and each case is obviously different but people can have anywhere from months to around a year to possibly longer. So back to planning things and what and when and how to do, sure would be nice if we knew what was going to happen from day to day. We have our 10 year anniversary next week and would like to be able to do something for it but we will probably have to be around to see a doctor or something. Oh how crazy life is, but thanks for everyones love and support and understanding when we don't know what or when or why we are doing what we do. We hope to have many more good times with all of you. Life is still good and we are fighting for the best possible outcome from all of this crap, so thanks for all your hopes and prayers in our behalf.

5 comments:

Anonymous said...

Thanks for the update! You're awesome. We appreciate how you have handled this crap. We hope to come down and see you again soon! - Greg

Carol Stump said...

It is not fair. You don’t deserve to suffer like this. But, you will make it! And then you will KNOW that you can do anything!

Kyle and Shanalee said...

gives me the goosebumps!! Thanks for posting Clint! First of all, HAPPY ANNIVERSARY!!! Second, I am sorry you are playing with this deck of cards, I don't wish it on anyone!

Allison Owen said...

Darn it! I was hoping you were out of town with the boys! Hang in there! We love you guys so much!

kimber said...

Man. I love that Clint posted, but I hate what he had to say :(

So now our prayers are for the Vidaza to do its thing.

Clint, you're right. One of the hardest things about this for you guys must be the unknown. It's just such an unfair roller coaster ride every single day.

Did you read the Hunger Games with Amy? This whole thing is kind of similar to that book. Katniss is plopped into the middle of a completely unfair and cruel situation and has to fight her way out. (She makes it, by the way, and that's what we're praying for you too.)

I hope it helps in some small way to know that we are all on this roller coaster ride with you. We want to be here for you for the highs and the lows. We feel your pain, not physically, but emotionally, and we all wish desperately that there was some way to take this all away.

Maybe that's the hardest part for the rest of us...our helplessness.

Love you so much.