In Need of a Christmas Miracle

Clint's leukemia is back. Not that it actually ever went away. But it is really back. It has found a way around the Nexavar.
We have known for a few days that his counts were heading up and that he had peripheral blasts, but they had been fairly low. But today his blast count shot up to 60%. We had a clinic visit today where they pretty much went over our options 1)do nothing 2)do some low dose chemo at home and just see how long it lasts or 3)be admitted to the hospital for another round of high dose chemo. Dr. Hoda said he doesn't recommend option 3 at all, he just doesn't think there are any benefits to it. So right now we are going with option 2. He said at some point the leukemia will find its way around everything. So that's where the needed miracle comes in.
A miracle is the only option for a cure that we can see right now. I believe with all my heart that it is possible. We have already been the recipient of more than one. But I also know that my Heavenly Father has a plan for each one of us, and only He knows what that plan is. I pray everyday that His plan and my plan are the same thing. I just pray that Clint, myself and our boys will have the strength to deal with whatever this life has in store for us.
It has been a very emotional day for us today. But as hard as it has been we have been blessed so much more. I can not believe how much we have received this holiday season. It is really an amazing thing to see how much goodness there is out there. I hope that everyone out there has an amazing Christmas! If you can please keep us in your prayers, and pray for that much needed Christmas Miracle! Thank you all, Love you!

We're still here and doing pretty good. I have so much to post about but I am too tired to do it tonight. But I promise I'll try and do it soon!
Thank you so much to everyone out there who are doing so much for us. We are loving the 12 days of Christmas. And Santa delivered some presents for the boys early the other night. Plus the amazing anonymous donations we have received. And so much more. We are so blessed. I don't even have words to describe the love we have felt. I wish I knew who was doing all these wonderful things for us so I could thank you in person, but just know it means the world to us. I pray that one day we will be able to pay it forward.
I love the Christmas season!

Sorry I never posted about our results of the biopsy. It wasn't good but wasn't horrible, it came back with 15% blasts in his marrow. They feel like at least the drug seems to be keeping it under control right now so we just have to pray it will continue to do that
Clint has been feeling pretty good still. We are actually out of town this weekend. (kinda scary but exciting) More on that to come later.
Hope everyone has a great weekend. Thanks for all the thoughts and prayers, keep them coming please. Love you all!

waiting

Still haven't heard anything about Clint's biopsy results...Could make for a long weekend. But hopefully it'll be a good, long weekend:)
Other than that things are pretty much the same. Clint did have a bout of nauseousness yesterday which was no good (he really hates to puke, not that I blame him) but seems to be feeling better today so hopefully it was just a fluke.
Well we're off to try to find something (anything) to do today. Feel free to send over some ideas :)
Please keep praying for good biopsy results. Thanks Everyone!
Have a happy weekend!

We made it! We went to clinic yesterday. It was the first time we'd had to go to LDS Hospital since Nov 18! Yep that is almost 2 weeks! We are also coming up on our longest stay at home since Clint was diagnosed. We had 29 days of being home after transplant before he relapsed and had to be readmitted, and we are at 26 days at home right now:)
Clinic was good yesterday, but VERY long. Our appointment was at 11:15 and we ended up being there until after 4:00. They gave him a 2 hour IV infusion of something to help keep his bones strong, and then we got some platelets, and then they decided to do a bone marrow biopsy. Dr. Petersen is very curious to see what is going on in his marrow. His counts are still pretty good. They have actually started going down again, which has never happened before. The docs seem very encouraged that the Nexavar is definitely doing something, they just don't know exactly what, thus the bone marrow biopsy.
We aren't sure if we want to know what is going on in there or not. As Clint said yesterday sometimes ignorance is bliss:) But I am expecting good news this time. Clint has been feeling really good, and we really believe that this drug is working some miracles in there. So please keep Clint in your thoughts and prayers that we can get some good news from this biopsy.

On another note I really meant to do a thanksgiving post and I just wanted to name a few things I'm most grateful for...
Family-we have the best!
Friends-we have the best!
Doctors, Nurses, PA's (everyone at the hospitals)-we have the best of those too!
Miracles
All the countless blessings we have received (from those we know and those we don't, we have had so many amazing things happen, you know who you are even if we don't, thank you!)
All the prayers and fasting that have been said and done in our behalf
The Church of Jesus Christ of Latter Day Saints
My relationship with my Heavenly Father and Jesus Christ
and most of all
I'm SO thankful that my husband is still here. There were definitely times that we did not think he'd be here for the holidays. And I pray that we will have many, many more holidays together with our boys!
We truly are so blessed and I just want everyone to know how much it means to us. It is truly humbling to be the recipient of so many acts of service. It is amazing! Love you all!

**I hope everyone had a wonderful Thanksgiving! We sure did! And if anyone has any great ideas on what to buy two 7 year olds and a 4 (almost 5) year old for Christmas feel free to share :)

Sorry it has been so long since my last post. Things have been going really good. Clint has been feeling great and his counts are looking pretty good. We have been going to the AF Hospital for blood draws everyday, and have been getting platelets at least every other day. But at clinic today they lowered his platelet parameter to 30,000 and he was at 57,000 today so we don't even have to get a blood draw tomorrow! It is going to be a hospital free day!!! The docs seem happy with his counts and just told him to keep on doing what he's doing. We actually don't even have to go back to LDS Hospital until Dec. 1, that seems like an eternity (we are crossing every finger and toe that we won't be back before then:).
I just had to share this picture. This is Clint's stomach after giving himself an insulin shot:( He obviously had very low platelets this day.
And a few more pictures of what we've been up to...
Here is Noah getting his hard cast on
And this is what the end result looks like...yes, it's VERY colorful! We could not talk him out of getting this one.
Luckily he only has to have this full cast on for 3 weeks. We go back on the 30th to get a short cast on and we are really trying to convince him to try out a new color on the next one:)

Clint and I went golfing at Thanksgiving Point yesterday. It was so beautiful and so much fun (and a little cold). Clint played really well and I actually had a few good holes myself.
Here is our self portrait...Love this guy!

Well I am exhausted tonight so I'm going to go to bed. But as this Thanksgiving week is approaching I have so much to be thankful for. We are so blessed and we are so grateful for all of you that bless our lives everyday! We will never be able to thank everyone enough or repay all the kindness, but please know that we love you all! Good Night!

We were able to come home on Saturday! I know crazy huh?!? From the ICU to home in just a few short days. When Dr. Asch came in to talk to Clint before discharge on Saturday she told him she has decided that he is a cat because he has so many lives:)
It is so nice to be home and just be able to spend time with the boys. We sure do miss them when we are at the hospital!
Clint is feeling pretty good right now. He does have to get some platelets today, but we are able to just go over to American Fork Hospital to get them. His wbc was down to 600 today with only 16% blasts which is definitely better than the 80%+ blasts that he has been having. His blood sugar has been really high so he has to give himself insulin shots quite a bit (which looks awful to me but he says it doesn't hurt much).
So now we are back to just enjoying every day since who knows what tomorrow will bring. We are asking for prayers that this new medicine will help to put him into a remission (which will be a first) and that he can continue to feel good.
We are so blessed and I really want to thank our Heavenly Father for all the amazing blessings in our lives. I am amazed every day at the blessings we continue to receive. Thanks to all of you that add joy and hope to our lives everyday! We love you!